Martha has spent most of her professional life focused on communication, as a writer, editor, and proofreader. Diagnosed with de novo metastatic breast cancer at 50 years old and with three pre-teen and teen children, she turned to writing to help process this sudden heartbreaking change to her present and future. Through those published pieces, she found the world of formal metastatic breast cancer advocacy. In 2017, she was part of Living Beyond Breast Cancer’s Hear My Voice class, returning in 2018 as an HMV mentor. Martha went through Project LEAD with the National Breast Cancer Coalition, has been a patient advocate mentor for GRASP, and has lobbied and reviewed LOIs for Metavivor, among other advocacy activities. She continues to write regularly for Cure magazine as a Voices contributor and has written for other publications and sites about her experience living with metastatic cancer. Among her most beloved invitations-to-write was a request from visual artist Valerie Roybal, for her work titled For-Get-Me-Not. Valerie died of metastatic breast cancer in 2018, before the gallery event showcasing this work, which used images and words to express life with a progressive and sometimes invisible disease. In addition to her work with the Metastatic Breast Cancer Alliance, Martha is a research partner in funded research and in patient-led research projects. The focus of her advocacy efforts continues to be on communicating with patients, care providers, pharmaceutical companies, and the public about why the patient experience matters and how we can work together to make lives better now and in the future.
Martha Carlson
Hosted, Produced, Part of…
Senior Producer and Host
Roberta Lombardi wanted to do something for the Connecticut moms and kids with breast cancer, but that *something* quickly morphed into a nonprofit effort to help break through barriers in the lives of moms with MBC. Laser focused on single moms with kids under 19 living at home and financial need, Roberta took her nonprofit (she calls it her fourth child) nationwide in mid-2023 and is already serving women in 27 states. While providing 6 months of financial support to approved applicants remains the core of Infinite Strength, Roberta has added to the support through one-day local (Connecticut) mom-and-kid retreats, in-person and online panels with some of the best experts in cancer care, a 2024 MBC conference, and a groundbreaking effort to change the picture through the Connecticut Coalition of Oncologists. This is a woman who does not sit still and we are so lucky to have her as an ally for people living with MBC. This episode may inspire *you* to get out there and do something!