Trailblazers of Charlotte
We begin the Season 3 Trailblazers with a twist. We’re taking Trailblazer on the Road! Our first stop will be the wonderfully, philanthropic city of Charlotte, NC. Join us as we speak with representatives of two truly grassroots organizations, dedicated to supporting the Charlotte breast cancer community in two very different ways. Interestingly enough, both organizations were started by women living with Metastatic Breast Cancer.
A Dash of Joy Summer Bonus
Ready for some Joy? It’s a summer episode full of it!! Come along for this joyful journey.
Twisted Pink and a Dash of Joy
We are ending season 2 on a positive note with a dash of joy from Dar Finkelstein and a conversation with our Trailblazer of the Month Caroline Johnson, founder of Kentucky-based non-profit organization Twisted Pink whose sole mission is to raise funds for MBC. Even though there is still no cure, our odds of getting to a cure through better funded research and science are improving because of the contributions of allies like Caroline Johnson.
MBC & the LGBTQ2S+ Community
join us for our discussion about the LGBTQ2S+ community and MBC. Co-host Natalia Green moderates a panel with Bob DeVito and Rainy Orteca, two guests living with MBC, and who are part of the LGBTQ2S+ community along with the co-founder of Queering Cancer, Dr. Evan Taylor. We also sit down with Kimiko Tobimatsu , a Canadian human rights lawyer and an award-winning graphic novelist whose book, Kimiko Does Cancer, tells the story of her breast cancer diagnosis at the age of 25 and the challenges she faced as a queer person, living with breast cancer.
Project Life and A Dash of Joy
“It is very important for us who are living with MBC to be able to go to a place where we know it’s safe to just be who we are.” This month’s Trailblazer is Project Life, a virtual wellness house that recently set up residence in cyberspace. The co-hosts Victoria Goldberg and Dar Finkelstein speak with the founder and the CEO of Project Life Leslie Glenn and its COO Jackie Seiner about the origin of the project, MBC wellness and survivorship.
The Magic of Palliative Care -Patients and Their Providers
This month we have focused on quality-of-life issues and this episode is part one of a two part series on the “Magic of Palliative Care”. At times the term “palliative care” is misunderstood and so we also use the newer term ‘supportive care’ to better explain how this care supports your quality of life as you go through MBC treatment. We first turn our focus to the medical providers who help us manage symptoms and treatment side effects and, by doing so, improve multiple aspects of our lives.
The Healing Power of Writing - Live Readings
In this special bonus episode we bring to life some of the readings from the Wildfire Community. Several writers living with MBC voice their own work to share thoughts on nature, dating, grief and so much more. Thanks to April Stearns and Wildfire for making these available for us to share.
The Healing Power of Writing
We’ve talked about many MBC related topics this season but mental health is one we ask about in every interview we conduct. Writing as a self-care tool is one we wanted to explore. April Stearns talked about it as the “legacy of story.” On this episode we explore living with MBC and the healing power of writing.
Advocacy from a Legislator’s Perspective - Rep. Debbie Wasserman Shultz
Rep. Debbie Wasserman Schultz shares with us the power of the patient advocate voice and the impact of personal stories. She talks about how her own experience with breast cancer has shaped her approach to issues related to healthcare. We are so thrilled to get a legislator’s perspective as we explore Our MBC Life.
April Trailblazer & Dash of Joy
Welcome to the Episode 2 of the Trailblazer series. Have you ever asked yourself if Wonder Woman was real? Ask no more. She lives and her name is Jamil Rivers. She is also our Trailblazer of the Month. Jamil was diagnosed with MBC at age 39. She is a mother of three, a caregiver, a full-time CEO of a non-profit organization , the board president of METAvivor and if that’s not enough, she has recently embarked on a new venture—The Chrysalis Initiative, a project dedicated to eliminating disparities in outcomes for Black women with breast cancer. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Policy and the Power of Patient Advocacy
“I see so much in the metastatic community this idea of just paying it forward, this idea of, yeah, this might not actually help me right now, but I'm still going to bring it up and I'm still going to advocate for it because it will help somebody else.” This is the story about the power of advocacy. Meet some of the individuals and organizations who are advocating for metastatic breast cancer every day wherever the work takes them.
Trailblazer and Dash of Joy
Our first season 2 trailblazer focuses on the patient - providing them with free services that enable them to focus on healing and time with their families. Through their Thriver Fund, 305 Pink Pack also provides dedicated to support to those living with metastatic breast cancer. Meet Rosemary Carrera of 305 Pink Pack and come south with us to Miami. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Meet our Season 1 Trailblazers
Meet our season 1 Trailblazers. These amazing women are making a difference in their communities. Finding inspiration from their own cancer experiences they have created organizations to support others, close gaps, and give back.
What Cancer Patients Need to Know About COVID-19 Vaccines
Welcome to this bonus episode of Our MBC Life. We are pleased to again highlight a program from our parent non-profit SHARE Cancer Support.
For many of us living with cancer there are numerous questions about COVID-19, the vaccines, and what we need to know to best take care of ourselves.
On February 11 SHARE invited Dr. Joshua Hill from Fred Hutchinson Research Center to discuss the COVID-19 Vaccine in relation to cancer patients and their treatment
A conversation with Carol Evans
On this bonus episode hear our entire conversation with Carol Evans, CEO and Exec Dir. at SHARE Cancer Support. Carol joined us on two episodes last season - Working while Living with MBC and our December episode on the #inclusionpledge. Our talk with her covered much more and we want to share that with all of you.
#InclusionPledge One Year Later
Join us for a conversation on biases and disparities, privilege and stigmas, allyship and inclusion. Maimah Karmo, Julia Maues, and Christine Hodgdon join Sheila McGlown and Lisa Laudico for an authentic and real conversation on these issues and more.
Re-release ~ Our Inaugural Podcast
Join us as we revisit our inaugural episode with Maimah Karmo of the Tigerlily Foundation. Hear about how Jersi Baker raised her voice asking “where are the people who look like me?” How the #InclusionPledge began and an update on the first six months. We’ll have more on the pledge when we air a new podcast with Maimah later this month.
Just Gotta SHARE - Trailblazer
After her TNBC early stage diagnosis our October Trailblazer, Tiah Tomlin, wanted to be a part of the solution. Hear how she did that with her non-profit organization which is “dedicated to providing a cancer educational program and hands-on supportive services to build confidence in people of all ages, leading to a better quality of life.”
All About Lobular Breast Cancer
Did you know that not ALL breast cancer can be detected by a lump? We are joined by Laurie Hutcheson of the Lobular Breast Cancer Alliance and researchers Steffi Oesterreich, PhD and Adrian Lee, PhD why ILC is difficult to research and what looks promising for the future.