The Healing Power of Writing - Live Readings
In this special bonus episode we bring to life some of the readings from the Wildfire Community. Several writers living with MBC voice their own work to share thoughts on nature, dating, grief and so much more. Thanks to April Stearns and Wildfire for making these available for us to share.
The Healing Power of Writing
We’ve talked about many MBC related topics this season but mental health is one we ask about in every interview we conduct. Writing as a self-care tool is one we wanted to explore. April Stearns talked about it as the “legacy of story.” On this episode we explore living with MBC and the healing power of writing.
Advocacy from a Legislator’s Perspective - Rep. Debbie Wasserman Shultz
Rep. Debbie Wasserman Schultz shares with us the power of the patient advocate voice and the impact of personal stories. She talks about how her own experience with breast cancer has shaped her approach to issues related to healthcare. We are so thrilled to get a legislator’s perspective as we explore Our MBC Life.
April Trailblazer & Dash of Joy
Welcome to the Episode 2 of the Trailblazer series. Have you ever asked yourself if Wonder Woman was real? Ask no more. She lives and her name is Jamil Rivers. She is also our Trailblazer of the Month. Jamil was diagnosed with MBC at age 39. She is a mother of three, a caregiver, a full-time CEO of a non-profit organization , the board president of METAvivor and if that’s not enough, she has recently embarked on a new venture—The Chrysalis Initiative, a project dedicated to eliminating disparities in outcomes for Black women with breast cancer. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Policy and the Power of Patient Advocacy
“I see so much in the metastatic community this idea of just paying it forward, this idea of, yeah, this might not actually help me right now, but I'm still going to bring it up and I'm still going to advocate for it because it will help somebody else.” This is the story about the power of advocacy. Meet some of the individuals and organizations who are advocating for metastatic breast cancer every day wherever the work takes them.
A Conversation with Judy Perkins
Judy Perkins joins co-host Victoria Goldberg to share her incredible story. She is a unicorn and a clinical trial success. Judy tells the whole story - the good, the bad, the joyful, the difficult, the grief, the friendship. And when asked is MBC chronic - well we don’t bleep out her reaction.
Clinical Trials: The Patient Perspective Part 2
We know the challenges of trials and the barriers to recruitment as outlined in part 1. Now in Part 2 we explore solutions with patient advocates and medical professionals who are working to find ways forward. Clinical Trials from a Patient Perspective Part II. Let’s solve this.
Trailblazer and Dash of Joy
Our first season 2 trailblazer focuses on the patient - providing them with free services that enable them to focus on healing and time with their families. Through their Thriver Fund, 305 Pink Pack also provides dedicated to support to those living with metastatic breast cancer. Meet Rosemary Carrera of 305 Pink Pack and come south with us to Miami. Also in this episode is a Dash of Joy from Our MBC Life’s own Dar Finkelstein. Dar is committed to living a life of joy and she shows us all how to do it. An episode full or hope, inspiration and joy.
Clinical Trials: The Patient Perspective Part 1
What’s it like to try and find a trial as a patient? What are the challenges and hurdles that have to be overcome? How do we get to a better place? In this episode we hear the perspective of patients and then go to the experts to get some answers. Part 1 of a 2 part series on Clinical Trials.
A Dash of Joy
Meet Dar Finkelstein, the new team member of this podcast and the future host of a monthly segment “A Dash of Joy.” It will air along with our Trailblazer series on the last Friday of each month. All of us need a dash of joy in our lives. Dar is a professional clown and runs not just one, but two Facebook groups devoted to this very subject: She knows of what she speaks.
Meet our Season 1 Trailblazers
Meet our season 1 Trailblazers. These amazing women are making a difference in their communities. Finding inspiration from their own cancer experiences they have created organizations to support others, close gaps, and give back.
What Cancer Patients Need to Know About COVID-19 Vaccines
Welcome to this bonus episode of Our MBC Life. We are pleased to again highlight a program from our parent non-profit SHARE Cancer Support.
For many of us living with cancer there are numerous questions about COVID-19, the vaccines, and what we need to know to best take care of ourselves.
On February 11 SHARE invited Dr. Joshua Hill from Fred Hutchinson Research Center to discuss the COVID-19 Vaccine in relation to cancer patients and their treatment
Best of 3BlackDocs
We are excited to share another Best of from Season One. 3 Black Docs know how to keep it real and laugh and have fun. Dr. Karen Winkfield, Dr. Zanetta Lamar, and Dr. Tiffany Avery bring their professional take on racial disparities in healthcare and addressing structural barriers that lead to disparities in treatments and outcomes.
A conversation with Carol Evans
On this bonus episode hear our entire conversation with Carol Evans, CEO and Exec Dir. at SHARE Cancer Support. Carol joined us on two episodes last season - Working while Living with MBC and our December episode on the #inclusionpledge. Our talk with her covered much more and we want to share that with all of you.
Report back from SABCS
Welcome to this bonus episode of Our MBC Life. It feels like a lifetime ago, but just a few weeks ago the world's largest breast cancer conference, the San Antonio Breast Cancer Symposium, was held. Just after the symposium SHARE welcomed Dr. Neil Iyengar from Memorial Sloan Kettering to a webinar where he shared information from SABCS highlighting both early-stage and metastatic research.
GRASP: Guiding Researchers and Advocates to Scientific Partnerships
Co-host Natalia Green finds out how Christine Hodgdon and Julia Maués, co-founders of GRASP (Guiding Researchers and Advocates to Scientific Partnerships) saw an opportunity last year to bridge the gap between researchers and MBC advocates in the pursuit of better research connections.
#TheRightDose
Anne Loeser and Dr. Aditya Bardia join the podcast to talk about the importance of getting The Right Dose.